I want to first start off this post explaining how and why I am now just starting out patient therapy, after my stroke. I had my stroke on April 15th, one of the scariest days of my life. I spent 4 days in ICU following the stroke and then a day in a transition room, before being sent to in patient rehabilitation.
While all of the time was very scary for me, I never felt like I was going thru it alone. Lover Boy stayed every single night with me at the hospital. He spent the first week with me the entire time, and when I was moved to rehab, he went to work during the day and came right back to the hospital after work. Lover Boy promised me before we got married that I would never again have to go thru anything alone, that we would always go thru everything together. It’s amazing to have such a wonderfully, supportive husband who every single day proves his unconditional love for us.
When it was time to be discharged from rehab after two weeks we had some decisions to make before I left the hospital. Do we do outpatient therapy? Do we do home health? If we choose outpatient how do we get me there and back? If we choose home health can they do as much? So we started doing some research and Lover Boy made calls to the insurance and I discussed our different options with my therapists there.
After everything was said and done we chose to do home health first, and then out patient. We couldn’t afford after losing my income for Lover Boy to take off up to 3 days a week, and I hated feeling like a burden to his parents and grandparents who were more than willing to take me. I just couldn’t do it. Silly yes, I know, but I felt like a burden.
Home health did nothing for me. I spent 2 months doing home health and honestly, most of what they did was talk. I found out they were supposed to be spending an hour with me….they spent 20-30 minutes. We were told by the insurance company that they would cover 120 home health visits and then we could transfer to outpatient if needed, but couldn’t go from outpatient to home health. We based our decision on that.
At my first visit we found out I only had 14 out patient visits remaining. I knew this had to be some kind of mistake because we hadn’t used any. No, it wasn’t a mistake….the people (3 of them) who Lover Boy had spoke with had all looked up the wrong thing. They were telling him about hospice! Hospice does not bring therapists into your home as he had explained to them. So I wasted 16 of my 30 outpatient visits with people that wanted to sit and talk to me.
So with that being said, we are doing what we can to make the most of the 14 visits that I have. Unfortunately my Physical Therapy was cut short because my left leg kept giving out. It’s the good leg and I don’t have much stamina. I tire quickly and I am still trying to recover from being sick. I like my PT tho. She’s nice, and very upfront with me.
Occupational Therapy was hell….the exercises they have you do hurt! I’m sure with time they won’t hurt as much but, for now it feels like torture. I do also like my OT. He’s nice and does everything he can to encourage me not to give up hope.
I was supposed to go back last Friday, but I was still hurting so bad I could barely move that I didn’t think I’d get much from it and cancelled. So now next week I’ll do my second visit and pray it goes a lot smoother.